Privacy Policy
Last Updated: [2/15/2025]
ASTOP PTSD Research Study (“we,” “our,” or “us”) is committed to protecting your privacy and handling your personal data with care. This Privacy Policy explains how we collect, use, store, and protect the information provided by participants in our research study, conducted by NYU Langone Health and approved by its Institutional Review Board (IRB).
By using our website and participating in the study, you agree to the terms outlined in this policy. If you do not agree, please refrain from submitting your information.
1. Information We Collect
A. Personal Information
We collect personal details, including but not limited to:
Name
Phone number
Email address
Date of birth
Demographic information (e.g., gender, race, ethnicity)
Emergency contact details
B. Health Information
As part of our study, we may collect health-related data, including:
PTSD symptoms and medical history
Current medications
Psychological evaluations
Treatment history
Responses to study surveys and assessments
C. Technical & Website Usage Information
When you visit our website, we may automatically collect certain information:
IP address
Browser type and device information
Pages visited and time spent on our website
Cookies and analytics tracking (see Section 6 for more details)
2. How We Use Your Information
We use your data only for research purposes related to the ASTOP PTSD Study. Specifically, we use it to:
Determine eligibility for study participation
Schedule study visits and communicate with participants
Conduct assessments and analyze research findings
Maintain compliance with ethical research standards (e.g., IRB and HIPAA compliance)
Improve our website and recruitment efforts
We do not sell, rent, or share your personal information with third parties for commercial purposes.
3. How We Protect Your Data
We implement strict security measures to protect your personal information:
All data is stored on secure, encrypted servers within NYU Langone’s research network.
Only authorized study personnel have access to your data.
We comply with HIPAA (Health Insurance Portability and Accountability Act) regulations to ensure the protection of health-related information.
Paper records (if applicable) are stored in locked, restricted-access locations.
However, no online system is 100% secure, and we cannot guarantee absolute protection. If you have concerns, please contact us directly.
4. Who Has Access to Your Information?
Your data is only accessible by the following:
Study researchers and staff at NYU Langone Health
Institutional Review Board (IRB) for regulatory compliance
Medical professionals involved in your study care
Law enforcement or legal authorities (only if required by law)
Your information will not be shared with third-party advertisers, marketers, or unauthorized individuals.
5. Your Rights & Choices
A. Participation is Voluntary
You may choose not to participate in the study at any time. If you withdraw:
You can request that your personal information be deleted.
Certain data already collected may still be retained in de-identified form for research integrity.
B. Accessing & Updating Your Information
You have the right to:
Request a copy of the information we have about you.
Ask us to correct or update any inaccuracies.
Withdraw consent and stop participation at any time.
To exercise these rights, email us at ASTOP@nyulangone.org or call 646-232-4548.
6. Cookies & Tracking Technologies
We use cookies and similar technologies to improve your experience on our website. These may include:
Essential Cookies: Required for basic website functionality.
Analytical Cookies: Help us understand how visitors use our site (e.g., Google Analytics).
Marketing Cookies: We do not use advertising trackers or third-party marketing cookies.
How to Disable Cookies
You can manage your cookie preferences through your browser settings. Disabling cookies may affect site functionality.
7. Data Retention
We retain your personal data only as long as necessary for the study:
Active study participants: Data is kept for the duration of participation.
After study completion: We retain data for regulatory purposes, but all personally identifiable information is removed or de-identified.
If you withdraw: You may request deletion of your identifiable data, subject to regulatory constraints.
8. Legal Compliance
This study follows:
HIPAA (Health Information Privacy Law) for handling health data
IRB Guidelines to protect participant rights
GDPR (for international participants) regarding data transparency
If legal authorities request your information, we will comply only if required by law.
9. Changes to This Privacy Policy
We may update this policy periodically. If changes are made, we will:
Update the “Last Updated” date at the top of this page.
Notify active participants of any significant changes.
10. Contact Information
For any privacy-related questions or requests, please contact us:
📧 Email: ASTOP@nyulangone.org
📞 Phone: 646-232-4548
🏢 Address: NYU Langone Health, 550 First Avenue, New York, NY 10016
This privacy policy applies only to the ASTOP PTSD Study and does not cover external sites or services.